Thursday, November 11, 2010

Molly Update

The doctors have discovered that Molly has Hereditary Hemorrhagic Telangiectasia otherwise known as Osler-Weber Rendu Syndrome. With Molly, this manifests itself in Pulmonary Hypertension which is very rare.

Her family is devastated at this new news, although this doesn't change much immediately for Molly.

She did a CPAP trial and handled it well. She will get a Trach and G Tube in on Monday and they are talking about moving her, eventually, to rehab to help her regain skills lost by the brain damage she's suffered.

Please continue to pray for Molly and her family as they endure this suffering.


TACParent said...

I read this news on her caringbridge page this morning. Sometimes 'answers' do not provide a cure ... but in knowing the reason behind the sudden illness there is some comfort. Mostly, though, in my experience, having answers doesn't ease the pain and suffering. Hopefully it will provide the doctors with some direction. That is my prayer for them today.

Dymphna said...

Thank you.

Kindred Spirit said...

I will offer my Mass this morning for this family and their intentions. Almighty God knows the whys and wherefores, and He will permit or ordain the very best for His dearly-beloved.

Dymphna said...

Thanks so much.

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